Privacy Policy

Maria’s Miracle, Inc. is a nonprofit organization that provides funding for critical care training including ECMO and provides resources for patients and caregivers facing ECMO treatment and long ICU stays.

 

To help us achieve our goals, we need to collect certain information from you through our website, https://www.mariasmiracle.org/ (collectively, with our mobile app referred to as the “Site”).

This Privacy Policy describes the types of information we collect, what we do with it, with whom we share it, and how you can correct or change such information. It represents an agreement between Maria’s Miracle, Inc. (also referred to “we”) and you, the end user (referred to herein as “you” or the “user”) as to how the user’s personal information is being used by Maria’s Miracle.

Please read our Privacy Policy and Terms of Use carefully. If you do not agree to be bound by this Privacy Policy and our Terms of Use, please immediately discontinue your use of the Site.

Please know that we may amend this Privacy Policy and the Terms of Use at any time and from time to time by posting such modifications on the Site. Except as required by law, we shall have no obligation to notify you of such changes other than posting such modifications on the Site. You can determine when this Privacy Policy was last revised by referring to the “Last Updated” legend at the bottom of this page.

This Privacy Policy applies only to information collected through the Site, but not to information collected or obtained from other sources. See Third-party links below. 

What kind of information does the Site collect?

Personal Information:  Personally Identifiable Information (“PII”), as described in U.S. privacy law, is information that can be used on its own or with other information to identify, contact, or locate a single person, or to identify an individual in context.  See How do we use the PII we collect? below.

Aggregate and Anonymous Data:  Aggregate and anonymous data is information collected automatically through the operation of the Site, as well as certain information about website usage which is aggregated and used in a manner that does not identify you personally (collectively, “Non-Identifying Data”). The Site may collect usage data (such as which pages of the Site you visit and in what sequence) through the use of various technologies. For example, we may collect IP addresses from individuals who access the Site. The Site does not link IP addresses to any PII, so although your session may be logged, you will remain anonymous to us. 

 

When do we collect PII?

We collect PII from you when you register for and participate in any of our events, contact us for information, ask to be put on our email list, donate to Maria’s Miracle, or otherwise enter information through the Site. 

 

What PII do we collect?

We do not collect more information that is reasonably necessary to participate in the Maria’s Miracle activity.  We collect the following PII via the Site:

  • When you contact us for information, to sign up to volunteer, join our survivor network, share your story, or ask to be added to our mailing list:  your name and email address

  • When purchasing tickets or making a donation: credit card information that is collected by GiveButter, our third-party credit card processors.

  • When purchasing merchandise: credit card and mailing information that is collected by Bonfire third-party merchandise fulfillment and payment processing vendor.

 

How do we use the PII we collect?

We may use the PII we collect in the following ways:

  • To allow us to deliver our content and product offerings

  • To personalize your experience and improve the Site

  • To allow us to better respond to requests.

  • To administer a survey or other Site feature.

  • To quickly process our transactions.

  • To send periodic emails regarding our products and services.

  • To follow up with you after correspondence (email or phone inquiries).

 

We may also use PII in aggregate form for purposes of research or analysis and for administration and promotional purposes.

 

What third parties do we share your information with?

PII:  Except as stated in this Privacy Policy, we do not disclose your PII to third parties without first informing you and obtaining your consent to having your PII shared.  We do not sell your PII for marketing or any other purpose, and we do not exchange mailing lists with other organizations.

We may disclose your PII to third parties without informing you in connection with the following:

  • Business-related functions: Like many organizations, we may hire other companies to perform certain services on our behalf such as hosting specific portions of the Site or maintaining databases. When we employ a third party to perform these functions, that third party will be provided only with the particular PII it needs to perform its function, and it will be required to keep the information confidential.  

  • Other disclosures: In addition, we may disclose PII without providing you with the ability to opt out under the following limited circumstances:

(1) to protect our legal rights, privacy or safety;

(2) to protect the safety and security of other users of the Site;

(3) to protect against fraud or other illegal activity or for risk management purposes;

(4) to respond to inquiries or requests from public authorities;

(5) to permit us to pursue available remedies or limit the damages that we may sustain;

(6) to enforce the Terms of Use and this Privacy Policy; or

(7) to comply with the law or legal process.

 

The third-party vendors we use to maintain the Site and collect and process PII, all of whom are required to keep the PII confidential, are the following:

  • Donations and credit card processing:  GiveButter

  • Merchandise purchases and credit card processing: Bonfire

  • Site operation and maintenance: Wix

 

All inquiries regarding the privacy practices of our Site and third-party vendors may be directed to Maria’s Miracle by email to info@mariasmiracle.org.

 

Non-Identifying Data:  Non-Identifying Data may be provided to third parties for research or analysis. 

 

How do we protect your information?

We take reasonable security precautions to secure the PII that you choose to provide against the loss, misuse, alteration or unauthorized access of such information. Unfortunately, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for third parties, not under our control, to intercept or access transmissions or private communications unlawfully. While we strive to protect your PII, we cannot ensure or warrant the security of any PII you transmit to us. Any such transmission is done at your own risk. If you believe that your interaction with the Site is no longer secure, please notify us of the problem by contacting us using the Contact Us feature of the Site or by emailing us at info@mariasmiracle.org.

If we learn of a security systems breach, then we may attempt to notify you electronically so that you can take appropriate protective steps. We may post a notice on the Site if a security breach occurs. Depending on where you live, you may have a legal right to receive notice of a security breach in writing.

Use of cookies and similar technologies:  Like many providers of Internet services, we may use “cookies” or other similar technologies to collect Non-Identifying Data. For instance, we use cookies to help us remember and process your billing information. They are also used to help us understand your preferences based on previous or current Site activity, which enables us to provide you with improved services. We also use cookies to help us compile aggregate data about Site traffic and Site interaction so that we can offer better Site experiences and tools in the future. We may also use trusted third-party services that track this information on our behalf. 

Although our cookies do not contain any PII, you should be aware that PII that we store may be linked by us to the information obtained by cookies. We do not, however, link IP addresses to any personal information. You can choose to have your computer warn you each time a cookie is being sent, or you can choose to turn off all cookies. You do this through your browser settings. Since each browser is a little different, look at your browser’s Help Menu to learn the correct way to modify your cookies. Please be aware that if you turn cookies off, some of the features that make your Site experience more efficient may not function properly.

 

Your choices and individual rights

All users of the Site may update or modify the PII previously submitted to us at any time by emailing us at info@mariasmiracle.org. If you ask that we stop using your PII, we will take reasonable steps to honor that request on a prospective basis. However, we may retain records of your PII for analytical purposes, record-keeping integrity, to prevent fraud, enforce our Terms of Use, or as needed in order to comply with applicable federal, state, or local law. In addition, if certain PII has already been provided to third parties as described in this Privacy Policy, we will take reasonable steps to ensure that the data is also deleted by such third parties.  

Although we do not knowingly request PII from residents of the European Union, if you reside in the European Union, you may have additional rights of privacy, including the right of access, the right of rectification, the right not to consent or to withdraw consent, the right of erasure, the right to object to processing, and the right to restrict processing.  See more at:  https://www.gdprsummary.com/gdpr-summary/

Although we do not knowingly request PII from California residents, if you reside in California and provide PII to Maria’s Miracle, you may have certain additional rights under the California Online Privacy Protection Act.  See more at: https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=201720180AB375

 

Third-party links

At our discretion, we may include on our website links to sites offering third-party products or services. These third-party sites have separate and independent privacy policies. We therefore have no responsibility or liability for the content and activities of these linked sites. Nonetheless, we seek to protect the integrity of our site and welcome any feedback about these sites.

How does our site handle Do Not Track signals?

We honor Do Not Track signals and Do Not Track, plant cookies, or use advertising when a Do Not Track (DNT) browser mechanism is in place.

 

If at any time you would like to unsubscribe from receiving future emails, please follow the instructions at the bottom of each email, and we will promptly remove you from ALL correspondence.

 

Contacting us

If there are any questions regarding this privacy policy, you may contact us using the information below.

Maria’s Miracle

5268-G Nicholson Lane #164
Kensington, MD  20895
info@mariasmiracle.org

 

Effective:   January 1, 2022
Last updated:  January 1, 2022